With more than 6-million Americans living with Alzheimer’s, my story is a shared narrative. Because reading creates empathy, I work to widen the perspective of my writing and include voices different from my own. Thanks to neuroplasticity, healthy brains have the ability to keep changing and learning. Each one of these books offers a helpful nudge in a new direction. My essays and articles have appeared in numerous publications including the Washington Post, Luxe, and Variable West, and are listed as notable in the 2019 Best American Science and Nature Writing. I’m currently at work on a second memoir about motherhood and the way travel cultivates a willing acceptance of uncertainty.
I was a new mother when I read this Alzheimer’s memoir and immediately felt that I’d found a friend. Elizabeth Cohen is funny, lyrical, and sometimes (understandably) frustrated as she takes on the bruising balance of managing a career while simultaneously caring for her aging father and her young daughter. The book is a testimony to the healing power of story and provided a valuable model to me as I sought to make sense of my own family experience by committing my memories to the page.
'Daddy walks around, dropping pieces of language behind him, the baby following, picking them up. He asks for 'the liquid substance from the spigot'. She asks for 'wawa'. He wants a tissue to wipe his 'blowing device'. She says 'Wipe, Mummy' and points to her runny nose. The brain of my father and the brain of my daughter have crossed. On their ways to opposite sides of life, they have made an X-On his way out of life, Daddy has passed her the keys.' Soon after her daughter's first birthday, her husband walked out of their rambling old house in…
The title poem in this collection, (made from lines spoken by the poet’s mother,) manages to embody both caregiver and loved one as Constantine gives gentle structure to a string of seemingly disconnected utterances. Each poem in the book explores themes of loss, memory, and family through a different lens, creating an almost kaleidoscopic vision of the world. The collection is a rumination, a celebration, and a beautiful example of how poetry can expand our perspectives and teach us to speak and hear new rhythms.
As with Constantine's previous titles, Dementia, My Darling can be enjoyed at random or in order. However, when taken in sequence, the poems construct a thesis on life as we remember it from moment to moment. What is your first memory of love? How soon will you forget answering that question?
When 68 year-old Gregory Tate is diagnosed with Alzheimer’s, his family members reckon with the past and try to move toward an unexpected future with love and honesty. This beautifully written novel offers readers a chance to see the crisis from varying points of view and encourages empathy for every member of the family. In addition, Golden works to raise awareness of the way Alzheimer’s disproportionately affects Black and Latino communities. African Americans are more than twice as likely as whites to develop the disease, and yet, are gravely underrepresented in research and clinical trials. Part of a diverse chorus represented by #AlzAuthors, Golden is a vital voice to follow.
A 2018 NAACP Image Award nominee and an NPR Best Book of 2017, a moving African-American family drama of love, devotion, and Alzheimer's disease.
Diane Tate never expected to slowly lose her talented husband to the debilitating effects of early-onset Alzheimer's disease. As a respected family court judge, she's spent her life making tough calls, but when her sixty-eight-year-old husband's health worsens and Diane is forced to move him into an assisted living facility, it seems her world is spinning out of control.
As Gregory's memory wavers and fades, Diane and her children must reexamine their connection to the man…
Akin to peering into the pages of a private journal, The Authenticity Experiment, is an unvarnished reaction to a series of heartbreaking losses. Tired of the way social media has forced us to create a relentlessly curated and cheerful version of ourselves, de Gutes presents a museum of true emotion. The consecutive deaths of her mother, a dear friend, and a beloved mentor move de Gutes to map her own identity around the absence of three critical landmarks. Musing on perfectionism, guilt, joy, love, and success, de Gutes finds the route to self-compassion is a long and winding one. We readers are lucky enough to be able to walk beside her.
* * * Winner of the Independent Publisher Book Award (IPPY) BRONZE MEDAL in LGBT Non-Fiction! * * *
The Authenticity Experiment: Lessons from the Best and Worst Year of My Life is the new collection of essays from award-winning writer Kate Carroll de Gutes.
In 2012, Kate Carroll de Gutes found herself at a rest stop “ruined with anxiety. And when I say ruined, I mean in a car, in hundred-degree weather, with all the windows rolled up, sobbing and crouched in the passenger’s seat rocking and waiting for the Ativan to take effect. I posted on Facebook, ‘Hello,…
My father’s neurologist described Alzheimer’s as “a real weird city.” It was as apt a description as I’ve found. This collection of magical, strange, and hilarious short stories kept me company as I navigated the shifting landscape of Dad’s illness. At that time, I could not have found a better reflection of my own stew of emotions than the “reverse evolution” chronicled in the first story in the book. “The Rememberer” saved me. Bender’s graceful tale of the acceptance of inevitable loss is suffused with love, and the way her writing lets imagination spring the bonds of reality encouraged me to respond with flexibility and curiosity as Dad loosened his grip on time, space, and identity.
In The Girl in the Flammable Skirt Aimee Bender has created a world where nothing is quite as it seems. From a man suffering from reverse evolution to a lonely wife who waits for her husband to return from war; to a small town where one girl has a hand made of fire and another has one made of ice. These stories of men and women whose lives are shaped and sometimes twisted by the power of extraordinary desires take us to a place far beyond the imagination.
Tanya Ward Goodman was raised in Tinkertown Museum, a New Mexico roadside attraction built by her father, Ross Ward. When he was diagnosed with early-onset Alzheimer's at the age of fifty-eight, Goodman left a writing career and new love in Los Angeles to move back home. In this book Tanya tells Ross’s story and her own, sharing the tragedy and the unexpected comedy of caring for this funny, stubborn man who remained a unique creative force even as Alzheimer's tore through his mind. Leaving Tinkertown is an account of the ways that loss reshaped an eccentric family and propelled the author to realize that her place in the world lay outside the museum.
My book is fantastical historical fiction about two characters who're wrestling with the monstrosity of their grief.
It takes you into London high society, where Ambrose tries to forget about how much he misses Bennett and how much he dreads becoming as cold as their Grandfather. It takes you to the family's country manor house, where Mattie isolates and old ghosts start to come out of the woodwork.
It's a story about loss and depression; it's a story about friends who don't let you walk through the valley of death alone.
Ambrose Bancroft returns to London society with his younger sister, hoping they'll leave ghosts of memory behind. They have only each other left. While Ambrose attempts to draw Mattie out, dragging her to balls and threatening to seek suitors for her, his sister recoils from his meddling. Finally, when Ambrose compels her to attend art class before she's ready, Mattie paints something horrific enough to banish them from society in public disgrace.
At Linwood Manor, Mattie and Ambrose aren't as alone as they think. Taking advantage of Mattie's desperate need to find freedom, a vanishing room lures Ambrose's sister into…
